Assistance needed for Tomiichi who suffers from nighttime suffocation, as reported by Uliana.
Rewritten Article:
Hey there! Let's talk about a heart-wrenching story from Tomsk, Russia. The charitable organization, "The Ordinary Miracle," has launched a fundraising effort to help 14-year-old Uliana Kozlova, who's been fighting Spinal Muscular Atrophy (SMA). Uliana needs an artificial ventilation device and a specialized wheelchair to make life easier.
Uliana's father, Vitaly, shared their struggle on the organization's website. He mentions, "Our daughter Uliana is 14. We've been battling SMA since her childhood. In our family, Uliana is the third child. As a baby, she was quite active, but a year into the illness, we started noticing she got tired quickly while walking long distances. She stopped walking independently from the 4th grade. We switched to home-based learning."
Uliana dreams of becoming a doctor someday and loves knitting. This year, she's graduating from the 8th grade. However, she needs a specialized wheelchair to support her spine. Her condition has worsened, with the onset of scoliosis, requiring a spine operation. Moreover, she needs a non-invasive artificial ventilation device for night-time breathing support. They reside in a small village in the Asinovsky District, approximately 100 km from Tomsk. Vitaly says, "When time matters, having essential life-saving equipment at arm's reach is crucial."
Currently, they need to raise around 267,000 rubles more. You can aid Uliana by visiting the "Ordinary Miracle" website.
If you're looking for more ways to help, here are some suggestions:
- Explore Russian charity platforms like Planeta.ru, Boomstarter, or Dobro.mail.ru, using keywords like “Uliana Kozlova Tomsk” or “donations for an ventilation device and wheelchair Tomsk.”
- Search social media platforms like VKontakte (VK), Telegram, Instagram, or Facebook using her full name or related keywords. Many local fundraising efforts are shared on social networks.
- Reach out to local Tomsk hospitals or clinics that treat SMA patients, or SMA support groups for information or contacts related to Uliana’s family or the campaign organizers.
- Check Tomsk news websites and regional news portals for articles about Uliana’s situation. Coverage often includes fundraising links.
- Search using Google or Yandex with phrases like “Uliana Kozlova help Tomsk” or “SMA help ventilation device and wheelchair Tomsk.”
- Explore platforms that aggregate multiple campaigns or nonprofits working with SMA and assistive devices for children in Russia.
Should you come across any direct links or posts about Uliana’s campaign, feel free to share, and I'll be more than happy to provide assistance or offer more specific guidance! Stay awesome! 🤘🏻
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